Our Story
Dysautonomia NZ was established in response to a clear and ongoing need for greater awareness, support, and understanding of dysautonomia in Aotearoa New Zealand. Through more than a decade of clinical experience as health professionals working in this field, we have seen the challenges many individuals and whānau face including delayed diagnosis, limited access to reliable information, and a lack of coordinated support. Dysautonomia is often complex and multifaceted, with many pieces of the puzzle frequently overlooked or misunderstood.
Recognising the impact this has on people’s lives, we came together to form the New Zealand Dysautonomia Foundation. As a national voice, we are committed to bringing these pieces together by raising awareness, strengthening education for clinicians and the community, advocating for improved recognition and care, and ensuring that people affected by dysautonomia are seen, heard, and supported.